We will ensure that these baskets are hand delivered and provide these families and individuals with a friend who understands the things they will be facing and can be a source of comfort when the challenges facing them are daunting and confusing. We are hoping to raise enough funds to put together 10-15 Hospital Survival kits initially, with the expectation that we will be able to reach out to families who have recently found out that their child has or will have a heart condition. This kind gesture and their friendship brought peace in a time of trouble and has inspired us to reach out together with this family and try to help others.
WOODHEART HOSPITAL FULL
They also brought us a gift, a Hospital Survival kit full of goodies, personalized notes, blankets and socks for our little one to wear in the hospital, and more.
WOODHEART HOSPITAL HOW TO
This family reached out to us and provided empathy and support by answering our questions about what to expect in the hospital and how to get through the challenges days ahead in the NICU, surgery recovery, and beyond.
We met a family, seemingly by chance, who also had a child born with a heart condition that changed our lives. Our doctors, nurses, family, and friends were all incredibly supportive, but many of them did not fully understand the weight that was on our shoulders. Our world was turned completely upside-down and we weren't sure where to turn for support or comfort. We found out that our son would be born with a heart condition called a double right sided aortic arch and vascular ring while he was in utero. CHD affects nearly 1% (about 40,000 new cases annually) of all children born in the United States, many times requiring surgery or multiple surgeries to correct the heart function. Our group is designed to provide support and love to families of children diagnosed with congenital heart disease (CHD) in the Las Vegas and Southern Nevada areas. All rights reserved.We represent the Heart Families of Southern Nevada support group. Improvements may be made by facilitating family contact allowing flexible visiting, assisting with partner/family accommodation, providing women with their basic needs during transport and providing assistance to relieve financial strain.įamily impact Neonatal Pregnancy complication Pregnancy stress Preterm birth Transfer.Ĭopyright © 2017 Australian College of Midwives. Other issues they identified were: physical difficulties during transfer information overload as they sought to understand their changing circumstances accommodation issues and financial stress resulting from their relocation.Īll women perceived their midwifery, obstetric and neonatal care to be exceptional and their neonatal outcomes were positive. The most difficult aspect of their experience was the distress of being separated from their children and families and undue stress and distress from their partners.
Without exception, the women said that having the support of their family was the most important factor in coping with their unexpected hospitalisation and the anxiety of having to deal with the uncertainty of their pregnancy outcome.
Themes were identified, illustrated by exemplars.Īll women were multiparous. Semi-structured interviews were undertaken during their inpatient stay and then again, by telephone in the months following their baby's due date. Using the NSW Agency for Clinical Innovation Patient and Carer stories method, 10 women were purposively invited and consented to tell their stories. However little is known about the women's experiences when such a complication occurs. The clinical outcomes of being 'in-born" improves newborn and neonatal outcomes is well documented. Women at risk of preterm birth before 32 weeks gestation are routinely transferred to facilitate birth at a hospital that has Neonatal Intensive Care.
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